A Christmas Exploring Mrauk U (Part 2 of the adventure)
January 24, 2012 at 6:02 pm | Posted in Uncategorized | Leave a commentTags: adventure, boat, brest cancer, Christmas, leopard cat, Mrauk U, pony and cart, temples, tonga
Christmas Eve
I had arrived in Mrauk U on Christmas Eve in the early afternoon. After lunch, and trying to make sense of the town map, I set off to start my explorations of the ancient site. I started off with one of the main temples, which happily was only a few minutes walk from my bedroom! Already the sun was sinking in the winter sky, and throwing a soft light in through the alcoves, bathing this Buddha in a golden light
Mrauk U is much much quieter than the more accessible and better known Bagan. However, the quiet was occasionally punctuated by the arrival of one of the ubiquitous “light trucks” which carry so many people. These were transporting large groups of school students around the temples, and many of them had loud modern music blaring from speakers adding to the air of festivity of these groups.
In the temple I had found a beautiful spot, giving a panoramic view of Mrauk U and sat down to watch the scene peacefully. Deep in thought, I hadn’t noticed one of these trucks arriving. The first thing I noticed was a stream of school students as they poured through the temple seeping out through the various exits and passageways. And all making their way towards me. Within moments I was surrounded by a cheerful, animated and enthusiastic group, asking me my name, where I come from and giggling at my responses. They were eager to practise their English, but I am not sure how useful it is with my Scottish accent. We all laughed together and before long they headed back to their van, to make their way to the next temple on their list. Suddenly it was again very quiet.
Trying to make sense of the map, I used the quiet time also to plot my vague direction of exploration and before long headed off towards another group of temples. On the way back, with the sun nearing the end of its day’s work in our part of the world, I found a little track up to a vantage point on the top of a small hill. I scrambled through some scrub, on a dried mud path, very glad that this is not rainy season and arrived at a clearing where I stayed to watch the sun set, the mist form and the evening rituals, activities and tasks taking place before me.

On my way back, I stopped off at a little stall selling coconuts and spent a peaceful interlude, sipping at was to become my daily evening cocktail (coconut water) and watching what was going on around me.
Back at the hotel, after a delicious Rakhine tomatoey fish curry, I tried to phone home to say I had arrived safely and all was well. The guide book had told me that there are only five phone lines to the town and with over 250 subscribers getting a line out is not easy. After numerous unsuccessful attempts I headed back to my room, to settle down for the night. My room was well equipped, and in addition to the hat and glow in the dark stars it had a well stocked fridge (no Andaman beer this time though) and a TV. However there was only one channel and that was the one which the staff were watching in the dining room! It switched from Star Movies to ESPN sports and on to Korean soap operas without warning, to my great amusement. I watched part of “Spy Next Door” before it switched to a football match which gave me a good excuse to read. The other great surprise which my room held was also revealed to me just before dinner. I wanted to wash the dust off my feet and turned on the tap in the bathtub, bracing for the usual chill of water. Within seconds though, the water from the tap was roasting hot to my utter delight as I realised that hot baths would be a further treat of my trip! How unfortunate that I hadn’t brought any bubble bath with me!! What a great way to round off a highly adventurous day! I slept fitfully, as is usual thanks to Tamoxifen, dreaming bizarrely of being unable to find my room in the rain, a strange dream considering this is the middle of dry season. I was also amused to hear gentle snoring from the room next door. Until I realised that if I could hear gentle snores, my neighbour would surely be able to hear my not so gentle snores!
Christmas Day
There were few signs of Christmas as I started my day, and after a nice breakfast, I set off to explore more widely. For the day, I had hired a bicycle so that I could get a bit further.
The day was unusually cloudy, but given how hot it can become in the daytime in dry season, this was perfect weather for cycling! I had a look at the map, and headed off with little idea of where I was going or what was in store. I followed a main track initially, and then just kept going, turning left or right along village lanes on the basis of what drew my interest and curiosity. Inevitably, after half an hour of what I thought might be a wide circuitous route, I was clearly very lost! I was near a monastery so I stopped, parked the bike and sat myself down beside the road on a grassy spot and consulted my map. The monastery was not marked and there was no other landmark to give me any clue as to where I was. What a glorious feeling! In no hurry to go anywhere, and able to just sit and soak in the sounds and activities around me I was in no hurry to move on. First I needed clarification of which direction the town was, either continuing on this road, or turning off one of the lanes nearby. As I looked up I saw three children heading towards me. As they approached, I realised that one of them was holding what looked like a very angry cat. This was no ordinary domestic tabby cat though, its ears were differently shaped and although it was the size of a cat, it was clearly a kitten of its species. It was marked just like a little leopard and my first thought that this was in fact a leopard kitten. I quickly realised that was not possible, and took some pictures of it so I could find out later what this animal was.
A monk approached, heading towards the monastery and was clearly not expecting to see a strange foreigner parked in the lane and he asked me my country. Then he asked me if I was a Buddhist. After my replies, I asked him which direction was the town and he pointed back to where I had come from. Off he headed to the monastery, and I brushed the dried grass off my trousers and got back on my bike. I continued to explore the back lanes, asking periodically the direction towards town. It was nearly 12 o’clock when I started recognising the shops near the hotel and stopped off at a roadside stall for a cold drink.
I took advantage of this time to study the guide book map. There were only 2 eateries mentioned in the book and I had already eaten in one. The other was described as being in a teak house and sounded nice so I decided to set off and find it. Easier said than done. The map was rather confusing and I found myself repeatedly heading down the same road which was clearly not the right one, but persistently failed to find it! So I started turning off down different roads, and keeping an eye out for somewhere for my Christmas lunch, preferably the Restaurant cutely named “For You”. Before long, passing along yet another new road, I caught sight of a little place and saw the name “For You”! Success! It was beside a couple of parked buses and small stalls selling bus tickets so was in a rather noisy spot but that didn’t trouble me. I went in, and was surprised that there was no one else there. Ready to leave, a woman came up to me and I asked her if they were serving meals. Of course they were, she smiled, and what would I like? With no sign of a menu I asked for fish – the Rakhine staple and within minutes it was being served up, piping hot and smelling delicious. And it was. Simple, and utterly delicious.
Once I had finished I headed back to the hotel as one of the brakes on the bike had stopped working, leaving the one which was working on the Twang Arm side which was not so easy to use. I took advantage of the time to consult the guide book again, and look at the maps. It soon became very clear that the orientation of the map was rather different to the orientation of the actual town and the “For You” listed was nowhere near the bus park! Another mystery which I resolved to solve at some point!
I the afternoon I headed off in a different direction, aiming to find a group of temples in the north eastern area of Mrauk U, especially seeking to visit a small hill temple called Pi Sei. Following my nose, and asking directions at every temple on the way I soon found myself carrying the bike along a rough, steep and narrow trail. It eventually brought me out on a main road, busy with women carrying wood, bullock carts heading home, children playing, women carrying a variety of goods on their heads, villagers carrying water, young men playing chinlon (like “keepie uppie with a small woven bamboo ball) and monks walking along barefoot.
The road wound its way between a number of little hills, mostly topped with little temples and jungle. The great thing about cycling is that you are able to cover quite a bit of distance, and pass through areas without feeling as if you are intruding. The challenge is that there are so many fascinating moments and beautiful sights that you have to keep stopping, balanced at the roadside to take photos! (I even managed to locate the “For You” restaurant which I had originally been looking for and made a mental note of how to get back there at some point.)
With all the spontaneous diversions it took me rather longer than I realised to get to the northern temples. The sun was by this time sinking quite rapidly and I did not want to be lost in the dark. Lost in the daytime is fine but lost in the dark is a bit more scary and a step too far towards more extreme adventure! So reluctantly I turned back, deciding not to head back through the wooded track, and kept on the main road. Sure enough it eventually took me to the town and I was soon back at the hotel parting company with my trusty bike! I wandered round in the dusk to the coconut stall and slowly sipped my coconut cocktail, watching the sky turn various shades of dark purple thanks to the cloudy sky. Soon I was back in my room, pouring my second hot bath of the day, before heading to the restaurant for Christmas Dinner of fish curry!
Boxing Day
I had decided to hire a tonga, or pony cart for the day so that I could explore the more distant temples, including the ones I had not reached the day before, and to minimise the “getting lost” time. I also made arrangements for a visit to the tribal villages for the following day, so that arrangements were in place in plenty of time.
After breakfast, the hotel manager rold me that my chariot was awating, in the form of her father, with his pony and tonga. I told him which areas I was keen to see and we set off, with me rattling around the back of the tonga. It was again cloudy and overcast, but dry and not cold.
Firstly we visited the Kothaung and Pi Sei temples and I spent a good bit of time exploring. Pi Sei is a small, overgrown hilltop shrine with four Buddha figures (facing north, south, east and west) and with a single Buddha figure on the top, visible from afar.
I loved this little temple, and spent quite a while exploring, taking photos, contemplating and enjoying the 360° view. I enjoyed the solitude and peace, and as I was coming down the hill, I met another tourist on his way up. That is how busy it was! We chatted briefly before heading off in different directions.
I spent a marvellous day, ambling through the villages, from temple to temple, climbing and clambering among ruins, walking respectfully and silently barefoot in larger temples, and all the while taking a ridiculous number of photographs. It was as I clambered up a steep and overgrown path towards a rarely visited hilltop set of temples that I suddenly remembered how much I had been dreading Christmas.
It was almost dark when I returned to the hotel, and parted company with my gentle and kind guides for the day, man and pony. There was just enough time for me to head round for my daily coconut water. Outside the temple, beside the coconut stall one of the pickups was parked, music blaring. Well actually, although I have quite a liberal and broad minded appreciation of music I am not sure that I would actually call it music. There was a thumping bass, and a screeching voice yelling out expletive after expletive. And not little mild swearie words, but the Big Naughty ones!! The students on this truck had the same enthusiastic smiles, and youthful exuberance but these were sporting extravagant mohawk and punk style hair styles along with black and purple make up! It was an innocent and incongruous sight as they piled out of their truck and bounded up the temple steps, the swear words continuing to blast forth from the truck!
It was all part and parcel of everything going around me, which I absorbed along with the delicious nutrients in the coconut water, reflecting on a magical day.
As well as reflecting, I could also feel a nervous flutter as I had made a Big Plan for the following day. If that went as hoped, I would be visiting remote villages and meeting some very special women. That account needs its own space and that will be the third and final part of the adventure!
Pushing myself to my limits – journey to Mrauk U (Christmas Adventure Part 1)
January 15, 2012 at 8:04 am | Posted in Uncategorized | 8 CommentsTags: adventure, Christmas, Mrauk U, no talk about cancer
I had enjoyed my adventure at Angkor in Cambodia this year enormously and found that it it boosted my post diagnosis confidence enormously. From the wheelchair days transiting Bangkok airport, I was off with a travel bag and exploring on my own. I have to say though, that if I am very honest, a break in Cambodia is perfect for boosting that confidence because it is neither physically nor logistically too challenging. You get on a flight, land in Siem Reap, waltz through immigration handing over your passport and pics in return for a full page visa, and then head out into the daylight catch a tuk tuk to your hotel and get ready to explore. Gentle yet exciting. My adventure to Mrauk U was a much more demanding trip. The journey was more complicated and physically demanding and the area far less touristed. I was travelling alone (through choice). And I was quite nervous about the whole adventure.
On 23 December, I had an afternoon flight to Sittwe. The timing was very welcome as I had been working up until the previous day and this enabled me to spend the morning packing and running out for last minute essentials such as mosquito repellent and loud toe nail varnish! Finally, I put the last essentials in my bag, switched off the fan, closed my lap top ready to head off line and upcountry for a week.
After check in I had a moment of excitement when I saw that the café in the domestic lounge advertised that was an internet café, but that was short lasted and I learned that there was no internet in fact, but a set of three sleeping computers. It took me a few moments pondering why the café used a picture of a washing machine on its signage. Only to realise that it was actually an aerial picture of a coffee cup!
My flight to Sittwe was straightforward and on time. I was amused that the passenger in front of me had among his carry on baggage, a pair of fairy wings. I hadn’t realised that we needed to bring our own wings to fly on this airline!
The flight landed as the sun was sinking in the late afternoon. I booked into the hotel, arranged my early morning transfer to the jetty and then headed out to explore Sittwe town. I managed to get really lost, and eventually had to ask directions to get back to the main street and the hotel. And promptly went right back out again, to find somewhere to eat the famous Rakhine sea food. I managed to get back safely, and despite being tempted by “adventurer lager” in the fridge, I turned in early as I had to be up long before sunrise to catch the early morning boat to Mrauk U.
I did not sleep too well, anxious not to oversleep and miss my boat, and just after 5 am I was getting myself ready to check out and head to the jetty. I had been looking forward to the sunrise journey but the morning was very very misty and dank. Not typical winter season weather at all so still very dark. Speeding through the damp streets on a motorbike tuk tuk I was chilled but soon arrived at the jetty. The boat was waiting, and my first major challenge materialised in the mist in front of me.
I am used to getting on and off boats in Myanmar, and have boarded by a variety of different types of access – from sturdy bridges to flimsy thin planks. I have given up on pride and accept help now if I am not too confident about the access. So catching sight of a narrow pair of planks, slippery in the mist and carrying my travel bag and supplies, I hovered briefly at the edge of the plank before one of the boatmen took pity on me grabbed my hand. Within moments I was safely across and on the boat. Ready for five hours of upriver cruising before I had to worry about how on earth I would get off the boat at the other end!
Our departure was delayed due to the thick mist and we watched as the early morning river activities took place around us, small wooden boats appearing through the mist bringing people from neighbouring villages and returning with goods and fish from the morning market. Figures shrouded in thick shawls and even the occasional soul wearing a Santa Claus hat to protect from the cold damp air.
Eventually, the boat hooted, the boat men leapt into action unravelling the ropes, disconnecting the electric cable from the boat which had lit up the jetty, and removing the planks and we moved away from the Sittwe jetty. I had been on the boat over an hour and finally I was heading somewhere.
As we travelled upriver, the mist slowly lifted, revealing eerie images on the river and along its banks. The broad estuary gradually narrowed as we wove our way inland, along a complicated network of waterways. By lunchtime, there was a distinct change in the atmosphere on board as local passengers started to gather their belongings, and prepared themselves for arrival in Mrauk U. The hilly area in the distance, gradually came closer and soon it was possible to spot a few temples on the hilltops. A crowd was gathered at the jetty, bicycle side car trishaws, bicycles, motorbikes and a few motorcycle tuk tuks and their drivers anxious to transport the passengers to their onward destination.
I had been on the upper deck and the ladder to get there was almost vertical not to mention extremely narrow. So manoeuvring myself, with my travel bags in my good hand and Twang Arm being used to stabilise my steps, I managed to get myself to the exit. Where I was met with a plank which was slightly less narrow, and this time dry, but steep due to the water being high. I dithered for a moment, and again one of the boat staff grabbed my hand and I quickly bounced along the plank and onto the dry land of Mrauk U. I negotiated a trishaw to the hotel and within half an hour was unpacking my bags in a room with stick on “glow in the dark” stars arranged in the Great Bear formation on a deep blue ceiling. The wardrobe had the essentials, a dressing gown, a spare blanket, a hair dryer and a bamboo hat to protect from rain or sun, which ever is prevalent at the time! I quickly settled into the room which was to be my home for the next five nights.
Eager to see the ancient temple city and its surrounds, I picked up my little backpack, hat, guide book and note book and headed off into the town to find some lunch to fortify myself for some serious exploring. And that story will be in Part 2!
It slipped my mind
January 7, 2012 at 3:34 pm | Posted in Uncategorized | 10 CommentsTags: breast cancer, Christmas, emotional, forgetting, fragility, healing, mortality, Mrauk U
Christmas has been an oddly emotional and strange time for me since I was diagnosed. When I first found the lump in September 2009, the first thing which came to my mind was that I would not be alive to see the coming Christmas. When Christmas 2009 came, not long after in weeks, but after a new lifetime of surgery, treatments, needles, appointments, a whole new vocabulary and learning to live with the cancer mindset, I was incredibly emotional. I struggled to hold tears in check when carol singers were singing a version of Jingle Bells in Myanmar outside our gate. I crumbled again last year, when the carollers came into our house and my composure was just to difficult to maintain.
So this year, I felt the first wobbles as we approached Christmas and I saw the carollers outside neighbouring gates. However, I left Yangon on the 23 December for my Mrauk U adventure and immediately was caught up in the immediate, making plans and exploring.
I arrived in Mrauk U on Christmas Eve and spent the rest of the day exploring on foot and taking a ridiculous amount of photographs. On Christmas Day I hired a bicyce and expored the nearly villages and temples, getting lost a number of times and having a wonderful time. I seemed to provide a great source of entertainment, asking for directions and questions, stopping for a cold drink in a roadside stall and returning to my hotel dusty and hungry for Christmas Dinner.
On Boxing Day, I hired a pony and cart to explore the further away temples and minimise the getting lost portion of the activity. Towards the end of the afternoon, after a day where I saw only three or four other temple tourists the whole day, I was exploring the atmospheric ruins of a temple complex when I remembered. I suddenly remembered that I had been dreading the approaching Christmas and its memories of not surviving to see Christmas 2009. I remembered that I had been extremely fragile the previous year. But something had shifted in my mind which put cancer to the side more than I realised and it completely slipped my mind.
Cancer is still very much in the forefront of my mind, and I am sure it will continue to be. However, the fact that this memory of being so emotional and connecting it so clearly with Christmas has faded so much shows me clearly that my mind is healing more than I had realised. For once I am incredibly thankful that I forgot something!
2011 in review
January 1, 2012 at 8:08 pm | Posted in Uncategorized | 3 CommentsThe WordPress.com stats helper monkeys have prepared 2011 annual reports for the blogs hosted on WordPress. And what a lot of fascinating information there is there too!
For example, one of the top search items which directed folks here, was “Barbie toes”!! And the most viewed and commented upon posts were the rants! They were also the posts I agonised most over posting.
I look forward to the coming year of blogging Thank you so much for your wonderful support and for virtually filling the Sydney Opera House four times!.
Here’s an excerpt:
The concert hall at the Syndey Opera House holds 2,700 people. This blog was viewed about 12,000 times in 2011. If it were a concert at Sydney Opera House, it would take about 4 sold-out performances for that many people to see it.
Shaping 2012 with three little words
December 31, 2011 at 3:05 pm | Posted in Uncategorized | 38 CommentsTags: adventure, breast cancer, discovery, escapade, guide, harmony, inspire, laughter, Mrauk U, New Year, recovery, resilience, three little words, vitality, wonder
This year it has actually been really hard to settle on my three words to guide and inspire me in the coming year. To be fair, I knew it would be difficult because I have liked my previous choices so much. Not only have they been the right words for me, they have been the right words for me in that particular year. When I first saw the idea of selecting three words at the end of 2009, it spoke so clearly to me and the three words came almost instantly. 2010 was indeed a year of recovery, discovery and laughter as I moved through the months of heavy treatment, back to Scotland to see family and friends after so long, returning to work and finally growing those characteristic grey chemo curls as I moved towards the end of the year.
Last year’s words clearly represented a shift in where I was with “harmony, vitality and adventure”. Harmony in terms balance in my life, professionally, personally, emotionally and physically as well as harmonious musically. Vitality encouraged me and spurred me on to build on my daily swimming and be even more active, taking up the gym and becoming fitter than I probably have been in decades. And adventure – well, this has been a favourite and I hav embarked on a number of adventures throughout the year, which have grown in their adventurousness as the year progressed!
So I started thinking about the words for 2012 over a month ago, looking forward to the process of selecting the words as much as I look forward to a new series of the Amazing Race! As the time approached I would start thinking of the overall areas I want to focus on and pick up on words as I heard them, read them or even as they came to mind as I was ploughing up and down the swimming pool.
I was however, right in my guess that this year’s choice would be much more difficult though. How could I settle on words which I liked as much and which were as meaningful as the previous years’ words? How could I pick only three words when there were just so many to choose from? I veered from extravagant words through to simple words, playing with each in how they balanced each other as well as how they sounded together. It is interesting too, that the mood of the words changed somewhat as I worked through the recent thorax and Twang Arm pain and associated fears, and that is reflected in my ultimate choice. Finally, after a great deal of polishing, reflection and dictionary searching I have my three words to share:
Resilience, escapade and wonder
Resilience comes first. This is one which I have leaned increasingly towards as the challenges of the past weeks played out, and the pain I experienced. It expresses the priority I aim to place on building my strength both physically and mentally so that I am in a better place to deal with whatever might come my way. The past weeks showed me that despite my pretty good health, both the cancer itself, and its treatment (combination of chemo, the radical surgery, radiation and the calcium-stripping Tamoxifen bonus side effect) have led to a fragility which I have to recognise and respect. So I intend to continue to build my strength physically, with my precious swimming, and the less popular but equally important regular gym visits and other healthy pursuits. Mentally and emotionally I will continue to prioritise my creative time and take control of what is in my hands. This year has seen me join a creative writing group and latterly a Book Club which have been lovely ways of connecting with likeminded souls here, as well as an inspiring way to spend free time. These are ways of building my strength and capacity to make me more able to “bounce back” following whatever unexpecteds and unwelcomes head my way.
The dictionary definition of resilience is 1) the capability of a strained body to recover its size and shape after deformation caused especially by compressive stress and 2) an ability to recover from or adjust easily to misfortune or change. There is also a very interesting discussion on psychological resilience on Wikipedia which tells us that “Resilience has been shown to be more than just the capacity of individuals to cope well under adversity. Resilience is better understood as the opportunity and capacity of individuals to navigate their way to psychological, social, cultural, and physical resources that may sustain their well-being, and their opportunity and capacity individually and collectively to negotiate for these resources to be provided and experienced in culturally meaningful ways”. How apt.
My second word is escapade. I toyed with coining my own noun “escapaderie” to describe the broad concept of being involved in escapades but decided that was just a bit too inane! An important word for in 2011 has been adventure. I have referred repeatedly to adventures, made field trips and short breaks into adventures and plotted adventures. These have all represented a shift in strength, confidence and independence. Two years ago I was unable to walk unaided through Bangkok Airport. Two days ago I returned from a fairly physically demanding trip to a remote part of the country, involving local flights, side car/trishaw transfers, exploring by cycle, pony and on foot and long boat trips which I had to board by slithery narrow planks!
It was a my Mrauk U adventure and pushed me further than I could have imagined possible at the beginning of even this year. My 2011 adventures have included remote field trips to North Shan and the Ayerawaddy Delta, a trip to Chiang Mai by overnight train and my somewhat extravagant birthday trip to the temples of Angkor in Cambodia.
In choosing “escapade” I wanted to maintain that sense of making the most of experiences, reaching out for the new and continuing to push myself. For me though, escapade also has a touch of naughtiness about it which appeals to the rebel in me! This is confirmed by the definition I found of escapade – “a usually adventurous action that runs counter to approved or conventional conduct”. What appeals additionally to me is that an escapade (in my world) can be as small as an almost imperceptible gesture through to a grand action which attracts attention. I can apply escapade to so many actions, even to the way my friend and I behave in the oncology waiting room together, being naughty cancer rebels and giggling about the grief we are going to give our doctors in the form of never ending questions!
And my third word, wonder, came to me in the swimming pool as I was ploughing northwards and southwards, waiting for the sun to rise. Again this has a variety of meanings. As a verb it encapsulates the action of questioning and enquiring, descriptive of my inquisitive soul as well as critical to my work. And there is never a shortage of things to wonder about! As a noun, it is that almost innocent sense of being in awe of things from the most simple through to the truly breath taking and grand. Throughout 2012 this will remind me to retain that sense of appreciation in what is around me as well as honing my natural curiosity.
As in the two previous years, I am ridiculously pleased with my words. They fill me with optimism for the coming year and the sense that I can take control of what is in my own hands. And that is another reminder that much as we cannot change many things which happen to us, particularly in the land post cancer diagnosis, there are many ways to shape our life and experience which are in our hands. Only we can grasp those ourselves and we have the capacity to interpret what is around us accordingly.
And that is why I have chosen the image below. A doorway into an unknown place, dark and frightening. It is also an image which gives me goosebumps of exhilaration as it reminds me of the emotions and new found confidence I felt when exploring the ancient and mysterious temples of Angkor earlier this year.
I wish you a 2012 which is as kind as it can be, and for continued strength and resilience from within each of us as well as from each other.
Return and reflect
December 30, 2011 at 8:21 pm | Posted in Uncategorized | 4 CommentsTags: adventure, breast cancer, Mrauk U, Rakhine, temples
I returned last night from my trip to Mrauk U and Rakhine State, with a few additional treasures which I had not taken with me – including my camera and its 700+ new photos, a travel bag full of muddy, dirty washing, several bruises thanks to a day cycling, a book about the temples and history of the area, a necklace made by women in the Chin villages I visited and a roughly hand carved sandstone Buddha figure.
A week offline is a long time, especially when the connection is so poor, so catching up and posting photos is taking more time than I would wish.
So here is a taste of my Christmas adventure while the details are on their way.
Tinsel and tinternet
December 23, 2011 at 11:47 am | Posted in Uncategorized | 8 CommentsTags: breast cancer, Christmas, internet, Lymphedema, Myanmar
I have just over an hour before I head to the airport, to spend a few days out of town over Christmas. Apparently there is no internet in the place I am going to. No internet at all. Hard to imagine when it has become such an integral part of our lives. So I am not even taking my laptop with me.
There are not so many signs of Christmas here (unsurprisingly) apart from festive lighting on various buildings, Christmas trees on sale in the supermarket and piped Christmas music in a couple of hotels.
I like being able to take the elements which are meaningful to me without the social pressure and commercial aspects of the season. And without wanting to put a label on my own spirituality I guess that I you could call me a “born again Buddhist” (I found that term irresistible
), respecting and recognising all faiths.
I don’t want to go into too much detail about my plan here, because the last time I did that Cyclone Giri disrupted that. However, I can say that I am going to a lesser visited part of the country, to an ancient city of jungle temples, waterways and tribal villages. I have pens, colouring pencils, a notebook and camera, mosquito repellent, pink toenail varnish and a straw hat. I also have a packet of festive Jaffa Cakes which my friend brought me. I plan to spend the days cycling among the temples, reflecting, appreciating and healing. I expect to have plenty to write about when I am back. And of course, plenty of photographs to share.
And on the topic of healing, I have good news. My upper chest is enormously improved. I still have some residual tenderness but I am back to my usual 800 metre morning swims instead of gentle half hour meanders in the pool. And this morning, with no need to time watch office hours, I put in a kilometre as the sun rose. And I can also say that I can see that swimming has a huge impact on my lymphodema. It was mild, but very painful and in the first few days of returning to swimming Twang Arm was squealing and yelping as I ploughed up and down the pool. Now I can feel it, but the pain has almost gone and it is much less perceptible. There is no pool where I am going so I need to keep an eye on it, but it is so good, psychologically as well as physically, to see how quickly a regular swim counteracts Twang Arms tricks.
So I am a much better space now. I am ready for another adventure, though I will be alert to the effects of adventures on this post chemoed-radiated-scarred and Tamoxifiex body. And ready for a festive season free of tinsel and tinternet!
I wish you all a special time, whether or not this is a festive season for you, with the things that are important to you.
Leaving you with a sneak preview of where I plan to be……
In the Dark
December 18, 2011 at 9:49 pm | Posted in Uncategorized | 19 CommentsTags: breast cancer, dark thoughts, light, lymphoedema, pain, sunrise, thorax
There are not many times when I am silent on this blog and there are usually predictable reasons. Firstly lack of, or slow, connectivity, which can happen here fairly regularly. Or being out of town and being caught up with other work and activities. Or, when something happens to worry me, like the wirple and I retreat into a shell of introspection and fear. It might even be hidden and disguised underneath a chirpy upbeat post. But I tend not to open up about whatever it is until after I know what it is about.
I returned from my field trip two weeks ago, tired, in need of a good hot shower, and with a standard issue stomach upset. But that was insignificant. I felt inspired, motivated and refreshed from my visit to projects and communities. It is an enormous boost, both personally and professionally.
So when, two days after getting back I suddenly developed severe pain in Twang Am and right across my upper chest, I was not happy. And let’s be honest, I was frightened. The pain was horrible overnight and I resorted to taking pain meds which is something I tend to avoid for some reason, unless pain becomes really troublesome.
The past two weeks has seen me go through a time of pain, fear and worry and now that it appears to be easing, I feel that I can “come out” about it.
It is not clear what triggered the pain, even though the onset was sudden. I had been rattling about in the field, sitting for protracted lengths of time on floors, travelling for long hours on very bumpy tracks and in and out of boats and when that is coupled with an old lower spinal fracture from many years ago and fragility of upper chest following radiation and surgery trouble arises. I tend to compensate for the old fracture when I am sitting on the floor and find it uncomfortable to sit cross legged for too long. This means that I often tend to lean on the other side, legs bent underneath me and taking all the weight on the opposite arm. And that arm happens to be Twang Arm. It looks as if Twang Arm has decided that it has been a bit on the quiet side for a while and it is time to squeal.
I consulted a different Doctor, Dr O. Sadly (for me) Dr H has been posted to another country as part of an Asian Doctor shuffle and our new Doctor had not yet arrived. But I know Dr O well, and he looked after me during the lost pneumonia days. Whenever I bump into him in town he always comments on how good my hair is looking, considering I was completely bald when I first consulted him. Appointments with Dr O are always fun, as his office is adorned with a variety of Tin Tin pieces of art. He examined me, and immediately diagnosed a problem with my thorax, probably as a result overcompensation for the older fracture. He also noted some swelling on Twang Arm and thinks that it could be a touch of lympoedema.
But of course there was a not so hidden agenda item. We both knew the reason why I was so frightened about this pain. I told him where my mind had gone and he reassured me that this does not look like bone mets. There, now I have said it out loud. Dr O described the pain very accurately to me, and said that it was highly typical of thoracic pain. I asked in at least three different ways about it being connected to Breast Cancer and in at least as many ways back, be told me he did not believe it to be connected. He prescribed me a heap of painkilling drugs, including a shot in the rear and told me that it should improve considerably in a few days. If it did not, then it would need further investigation, ideally through MRI as X Ray would be unlikely to give enough detail.
And of course that was very reassuring. I left the surgery clutching my bags of meds and a tender rear. But although it was reassuring at one level, I can’t say that my mind was immediately relieved. I needed to see if the pain would subside, and if it did not, well it would need to be looked into. And that took me to another whole swathe of fear.
Having an MRI is fine, but we all know that it would show up any nasties lurking as well as thorax or other problems. And that is the thing. It is not just about investigating that particular pain, it is the fact that I would need to prepare myself mentally and get my head in a space to handle whatever results it might show. And that is what I find so hard.
In the days following the appointment with Dr O I took the pain meds religiously and it is hard to say what happened with the pain because it is hard to know what effect the pain meds were having. By the weekend, I came to the end of the course and moved onto no pain meds. The pain was still there, and still painful but it is hard to gauge the level of pain when it had been so severe before. But it was certainly better than it had been, even if not as dramatically improved as I had wished for.
And now a week later, I am in much less discomfort. The thorax pain is greatly improved, and tender now rather than take-your-breath-away agony. However, Twang Arm is not so improved. The thorax pain made it painful to swim so I rested for a few days until it felt that swimming was not aggravating it. And it is clear that Twang Arm took full advantage of that time to crank up its discomfort. There is not a great deal of visible swelling but it is very uncomfortable and I will need to get it checked out and get a plan of action to tackle its attack head on.
But at least my head is in a better, less dark space. Following diagnosis we have a “two week” rule. If there is unexplained pain or other potentially worrying symptom, that goes on for two weeks without improvement then it needs to get checked. I saw Dr O almost right away due to the pain levels, and now I am at the two week point so it seems a good time to test the rule. There is clearly a great improvement. And as Dr H told me, a useful bench mark is the fact that “cancer pain and symptoms generally get worse not better”.
This darkness transports me right back to the time soon after diagnosis and the overwhelming feeling that something monumental had shifted in my world. I felt as if the certainty of the daily sunrise was a metaphor for the assurance I had had of my physical health. Being confrontd with my mortality revealed a fundamental shift in my world. This new cancer world felt akin to a world where the sunrise and daylight warmth were but memories.
In our world, the sun rises every morning. It never fails. We know we can completely rely on it. We can be absolutely confident that the night sky will lighten and that the sun will appear over the horizon. We can even be reasonably sure what time it will rise. And moreso, we know it will do so every day without disappointment. Some days are sunnier than others and we can see the sun and that it did rise. Some days are cloudier and the sun is not itself visible. However, the very fact that it is daylight tells clearly that the sun did indeed rise.
So just imagine, if one day, unexpectedly the sun doesn’t rise. The minutes tick towards the due dawn hour and the sky doesn’t lighten. Can you imagine the disbelief as the sky stays stubbornly dark and realisation sinks in that the sun is not going to rise? The world shifts into a dark and cold place. Everything changes. Everything fundamental which we take for granted suddenly shifts. There is no daylight, no warmth, no growth and the colours all change. There is not enough power and energy to illuminate our lives and maintain food sources. Humans are resilient and creative beings, however, with a strong urge and will to survive and with human creativity and incredible technology at our fingertips. After the initial shock we can imagine that ways are developed of dealing with and adapting to a cold, dark world. Life somehow continues. Daylight and sunshine are but memories and we think with regret how much we took them for granted and lament that we did not value them more. Despite the efforts to adjust and adapt though, life can never be the same again. It can never go back to the way it was before.
That is obviously an extreme and dramatic analogy, and massively oversimplified. But there is something about a cancer diagnosis that felt very similar to me, however. Hearing those words “highly suspicious of cancer” shook me to the very core of my existence. The sun at the centre of my universe had changed and my world suddenly looked very, very different. Of course I would cope though. I would readjust, I would recalibrate. But I could never go back literally and figuratively.
This post diagnosis life does have its dark moments, with many prompts such as signs and symptoms which worry us, the fear of recurrence, persistent pain, the discomfort and restricted movement of Twang Arm, friends with metastatic cancer, the physical and visible scars of the treatments. It is not a case of wallowing in this darkness, but it is important to know it is there and navigate our way through it as best we can.
This is one of the reasons my morning sunrise routine is so important to me. It helps me to retain that sense of optimism through a very evident physical display of light and warmth. And while my mind might not be completely freed from these black thoughts, they have been considerably weakened. If the New Year brings continuation or worsening then I know what I need to do, but for now I am focusing on that improvement and making plans for a Christmas adventure.
Bridges
December 10, 2011 at 12:06 am | Posted in Uncategorized | 7 CommentsTags: bamboo, breast cancer, bridge, delta, waterways
On the day I was leaving to go to the field, the car arrived twenty minutes early. It was just after 6 am so I quickly closed down my laptop, gently turned off the lights, picked up my bags and closed the door behind me. I had checked my email in the dark, knowing that I was unlikely to get online again before my return on the Friday, acknowledging the importance of my bridge to the outside world to family, friends and a community of former strangers who are increasingly important in my life
As we drove across Yangon, the sun was just making its way over the horizon and the quiet streets were bathed in a deep pink glow. By the time we passed Inya Lake the sun was resting gently above the horizon, and the park area on Pyay Road beside the Lake, in contrast to the roads, was filled with people going about their early morning exercise, walking, jogging, tai chi, yoga and working on formation aerobics. An intense pink light had developed which was throwing red shapes over the city’s buildings.
We continued across town, and turned westward at the 8 mile junction. Before long we crossed the Ayerawaddy River over the great Bayinnaung bridge, Yangon gently warming behind us and the river busting with activity below us. My colleague told me with great excitement that we would pass by a massive bridge which was newly constructed and had been opened the day before. He had watched the opening ceremony on the TV news.
As we continued westwards towards Pathein we continued across a landscape punctuated by a complicated system of waterways from slender streams, to massive swathes of the main Ayerawaddy river, all making their way towards the Andaman Sea. We eventually turned off the main road to travel southwards, onto a smaller road which soon turned into a stony track. Our speed dropped right down as we bumped along, my colleague somehow managing to sleep for a good part of the bumpy ride.
I can never doze during these trips, no matter how long they are, as the journey is so fascinating. Passing everyday life is so interesting, and I realised that I was soon becoming obsessed by the incredible number of small bridges leading to homes, buildings, fields and paths across the small waterways near the road. There were some tiny bridges, slim and deceptively flimsy looking, which were made of a couple of lengths of bamboo, laid across the water, resting on a V formation and with a kind of “hand rail” to enable people to cross the water safely.
There were more seemingly sturdy bridges, the bamboo more intricately woven to make an apparently more firm structure. There were quaint little arches over the water linking roads and homes. There were groups of men sitting on half bridges, and washing on more sophisticated bridges.
It is clear that in this landscape where waterways, like veins, criss-cross everywhere, bridges from simple to more complex structures right through to the phenomenal newly opened kilometres long bridge are critical to life in the delta.
As indeed the internet in its role as my bridge to the outside world is critical. I would feel incredibly isolated and cut off without my bridge. If that bridge is broken, or damaged, as can happen quite often here, I feel incredibly isolated.
However, as our journey continued and we approached our first destination, I realised that in fact the bridges had an even more powerful association. Before my diagnosis, I would not think twice about field trips and always looked forward to them. Being so ill pulled me up short, and being robbed of independent life and a great deal of mobility, field trips were well off my agenda for a good while. Now, back in the flow, planning adventures and working in remote communities, I feel that this trip represents a real bridge to my other life, the life before cancer.
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